|
Domain 1: Physical functioning
|
general
|
|
Normal functioning
|
general
|
 Able to function well with no or minimal CAH-related restrictions
|
typical
|
 Normal functioning except for having to take medication daily
|
variant
|
|
Sexual functioning
|
general
|
|
Increased risk for sickness
|
general
|
|
Medication
|
general
|
 General medical regimens
|
typical
|
 Stress dosing
|
typical
|
 General side effects from medication
|
typical
|
 Weight concerns from medication
|
typical
|
|
Physical side effects of CAH
|
typical
|
 Adrenal Crises and hospitalizations
|
typical
|
 Reproductive functioning
|
variant
|
|
Domain 2: Psychological functioning
|
general
|
|
Processes involved in understanding or becoming aware of CAH
|
general
|
|
Understanding of identity
|
general
|
 Normal
|
variant
|
 Different
|
variant
|
|
Emotions and cognitions related to CAH
|
general
|
 Negative
|
general
|
 Positive
|
variant
|
|
Mental health concerns
|
typical
|
|
Sexuality
|
variant
|
 Gender identity and role
|
variant
|
 Concentration and learning issues
|
variant
|
|
Domain 3: Interpersonal relationships and processes
|
general
|
|
Disclosure and others' awareness and knowledge of CAH
|
general
|
 Impact of CAH on others
|
general
|
 Interaction of CAH's genetic component with relationships
|
general
|
 Utilization of support groups
|
general
|
|
Supportive people and behaviors
|
general
|
 Parents
|
general
|
 Other important relationships
|
general
|
 Romantic Partners
|
typical
|
|
Unsupportive people and behaviors
|
typical
|
|
Impact of CAH on dating
|
typical
|
|
Having never met anyone else with CAH
|
typical
|
|
Domain 4: Healthcare experiences of women with CAH
|
General
|
|
Physicians
|
general
|
 Physician's knowledge of CAH
|
general
|
 Negative medical interventions
|
general
|
 Positive medical interventions
|
typical
|
 Referrals
|
typical
|
|
Mental health clinicians: therapists, psychologists and psychiatrists
|
general
|
 Reasons for and goals of mental health treatment/therapy
|
general
|
 Positive psychotherapeutic interventions
|
general
|
 Negative psychotherapeutic interventions
|
variant
|
 Clinicians' knowledge of CAH
|
variant
|
|
Intrapersonal processes in healthcare treatment
|
general
|
|
Domain 5: Recommendations for healthcare professionals
|
general
|
|
Helpful therapeutic traits
|
general
|
|
The need for more education about CAH
|
typical
|
 Things to consider when treating individuals with CAH
|
typical
|
 Emotional impact
|
typical
|
|
Medical considerations
|
typical
|
|
Connect individuals with support groups
|
variant
|
|
The importance of access to therapeutic services
|
variant
|
|
Domain 6: Systemic considerations
|
general
|
|
Generational and cohort differences in women with CAH
|
typical
|
|
Availability and appropriateness of care
|
typical
|
|
Insurance and other financial concerns related to CAH
|
typical
|
|
Societal biases and expectations
|
variant
|
Able to function well with no or minimal CAH-related restrictions
Normal functioning except for having to take medication daily
General medical regimens
Stress dosing
General side effects from medication
Weight concerns from medication
Adrenal Crises and hospitalizations
Reproductive functioning
Normal
Different
Negative
Positive
Gender identity and role
Concentration and learning issues
Impact of CAH on others
Interaction of CAH's genetic component with relationships
Utilization of support groups
Parents
Other important relationships
Romantic Partners
Physician's knowledge of CAH
Negative medical interventions
Positive medical interventions
Referrals
Reasons for and goals of mental health treatment/therapy
Positive psychotherapeutic interventions
Negative psychotherapeutic interventions
Clinicians' knowledge of CAH
Things to consider when treating individuals with CAH
Emotional impact
general = 7-8 cases, typical = 6 cases, variant = 2–5 cases.
general = 7-8 cases, typical = 6 cases, variant = 2–5 cases.